Jacob was diagnosed with a very rare form of Dystrophy called Metachromatic Leukodystrophy at age 4.

Metachromatic Leukodystrophy causes a break down of the Central Nervous System. In 2006 Jacob suffered a Grand-Mal Seizure that rendered him unresponsive and revival measures were taken. After this incident Jacob suffered with various types of seizure activity on an hourly basis, in addition to seizures caused by medications.

For seven years Jacob suffered from horrible side effects from medication and we were left helpless. Children with this diagnosis are not expected to live much past 4-6 years from the onset of symptoms as this condition is deemed terminal.

However, we have beaten the odds already with Jacob turning 13 years old in December! Amen to that! Jacob started his CBD oil on May 30, 2013 and not only has he been seizure free, he has also been pharmaceutical free! Our lives have been forever changed by hearing our little angel’s sounds of joy, better sleep for all of us, better appetite, and his eyes stopped rolling and are now doing some tracking of objects. These are just a few of the subtle things we are noticing.

Our home is now a home of peace, and tears flow as I write this. True peace, with no fear of what might happen from one second to the next. We don’t know what the future may hold, but our goal is to give Jacob the best quality of life possible. We know that our, and I say “our” quality of life has improved 100% because many don’t realize seizures don’t just impact the ones who have them, but those who are caring for them. Realm of Caring is doing a great mission and we pray only blessings for them and the lives they touch.

5 thoughts on “JACOB

  1. Where do u get this from my little boy is 10 next month he was diagnosed with meta chromatic leukodystrophy just b4 his 3rd birthday x

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