Olivia is 4-1/2-years-old and has Dravet Sydrome. Her seizures started unexpectedly at 8-months-old. Dravet is a genetic condition that she will have her entire life. Her prognosis is considered “guarded” as the future is unknown for Dravet children. Their seizures are extremely persistent despite multiple treatments and are often life threatening or life altering.
My hope for CBD is that it will allow us to remove one of her most damaging pharma drugs and also decrease her seizure severity/frequency. I am grateful for people, like the Stanley family and all those involved with the Realm of Caring, who are making viable advances in treatments such as this. They are saving lives. What a wonderful and exciting thing!
Olivia is a true gem. She is very bright, full of laughter and love. She embraces all people with an unconditional acceptance. She is my greatest teacher, and I am thankful every single day to be her mommy.