“Addelyn Patrick sleeps as many as 19 hours a day. Instead of learning to walk and talk, her little world revolves around hospitals and drugs.
Love is what keeps her parents and big brother, Colin, 4, fighting to stop her seizures.Ken Patrick said Colin sneaks into Addy’s room to lie under her crib.
“Because I love Addelyn and I want to be next to her at night,” said Colin.
Meagan and Ken Patrick said Addy was diagnosed with Optic Nerve Hypoplasia at three-and-a-half months old. They said she’s legally blind, has hormonal dysfunction, and brain malformation. which causes severe epilepsy.
“It’s the worst kind of hell you can ever imagine, to see your child in pain, and there’s nothing you can do about it,” said Meagan Patrick. “Just nothing you can do to stop it.”
Addy has up to a dozen seizures a day, depending on how much medicine is in her system.
The Patricks have tried several different drugs. They said none of them stop the seizures, instead they diminish Addy’s quality of life.
In August, they started looking into alternative treatments. And now, the Patricks are actively pursuing medical marijuana for Addy.”
– ACTON (WGME)