David was diagnosed with Infantile Spasms at 16 months with prognosis being Lennox-Gastaut Syndrome or growing out of Infantile Spasms by age 5ish. We are at 5 so nuero (hasn’t confirmed or diagnosed) but suggests Lennox-Gastaut Syndrome.
We started with ACTH and then several drugs; topamax, keppra and sabril before doing the ketogenic diet, which helped for a while and then seizures came back so we quit that and tried Onfi with no luck.
David also has mild autism. I am hoping for seizure freedom and a chance for him to strive like a child is suppose to.
David started Charlotte’s Web Dec. 27th and we are seeing fewer and less intense seizures. Also slow improvements with attention span, words, babbling, eye contact, directions.