JACOB

JacobBlog

 

JACOB

Jacob was born on October 5, 2011 at 35 weeks & 5 days because they saw the umbilical cord around his neck loosely in ultrasound. He weighed 5 lbs 12 oz, and was 19 in. He had a left clubfoot and a soft cleft palate. He was transported to a different hospital at 2 days old, to be admitted into the NICU. Within the first week of him being in the NICU, we found out he had many other birth defects including, 4 heart defects, and a right side inguinal hernia. He was released from the NICU on his actual due date which was Halloween.

Fast forward to 4 months of age. Jacob started refusing his pacifier, smiled, giggled and said Momma all at 4 months. Then, at 8 months, our world changed. That’s when Jacob started having seizures. I took him to the ER, where they wanted to see one before they admitted him, just me showing them a video of him having one wasn’t enough. Sure enough, he went into one and I yelled for the Nurse & Doctor to come into the room. They verified that it was a seizure, and admitted him. He had an EEG done. He was diagnosed with Myoclonic seizures then, and we left the Hospital with a Neurologist and medication (Keppra).

Just one month later, a different type of seizure began. Neuro confirmed he was having Infantile Spasms. Those are referred to as the silent killer, as with each and every spasm, development regresses, taking Jacob back to the state mentally of an infant. He was then started on Banzel. Banzel wasn’t working, so we kept him on Keppra, and added Klonopin. Klonopin wasn’t working, so we too him off of that and started an Intramuscular injection called ACTH. Bad results, so we left him on Keppra, and started him on Toamax. We started seeing some results but not 100% control, so we added Topamax. Same story, so we added a third medication called Vigabatrin aka Sabril. That combo of Keppra, Topamax, and Sabril did ok for a little bit, but we still weren’t seeing the results we wanted to see.

I read online about CBD Oil and how it was helping a countless number of people with neurological issues, epilepsy, Cancer etc. I then decided it was time to move to a legal state and do what I could to get Jacob on the CBD Oil.

We finally started the CBD Oil strain Haleigh’s Hope almost 4 weeks ago! While Jacob is still 1-6 months mentally, and 3 & 1/2 years old physically, he is, since starting the Haleigh’s Hope, starting to try to sit up, and hold his head up for longer!!! We’ve only had one day in almost 4 weeks of Myoclonic seizures! Jacob’s main Epilepsy diagnosis is Generalized Myoclonic, & Tonic Clonic seizures, with Lennox-Gaustaut Syndrome. He is the love of our lives and we will do anything to better his life!

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