Nico and Bebo are four and a half! They have Miller-Dieker syndrome, which causes a brain deformity and intractable epilepsy. The condition is life-limiting but does not limit their personalities or their smiles, which are huge. Their likes include sitting in laps, imitating whale sounds, and being told how loved they are. Their mom fought for the passage of Maryland’s medical cannabis law on their behalf. The boys were poster children for the passage of the law, and they did a lot of media appearances in their onesies. Though they have a lot in common, Bebo is the sensitive boy and Nico is the clown. They have taught us more about love than we knew existed, and they are the reason we fight to provide safe cannabis access to children with severe conditions.


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