My sweet Carlee entered the world at 2 pounds 8 ounces on July 6, 2010. I wouldn’t know she existed for another twenty months. The world of Foster Care brought her to me and our family. Over the course of her first year with us, her health declined rapidly. She had many specialist and many doctors and many medicines and finally a few diagnoses. Carlee has LGS (Lennox-Gastaut Syndrome). LGS a type of epilepsy that is random and has no pattern. Her seizures change day by day and minute by minute. Her doctors, after over a year of trying medicines found a medicine that they thought would work. It did, for three months and then the seizures came back with a roaring vengeance. Her prognosis was not good. They said she wouldn’t be able to have a normal life, eat, speak, walk, or communicate. She is steadily proving them all wrong.
Carlee was approved to use Charlotte’s Web cannabis oil in April of 2015. Within in just one day, it was working. She had no visible seizures for the first time since she was twelve months old. She’s been using the oil for five weeks and we have not seen one seizure. She’s coming off of her prescription medicines (which make her drowsy and delay development) very well. She’s smiling. She’s laughing on her own with no stimulation. She’s making eye contact. She’s starting to sign her first words. She giving hugs. Her steps are becoming steady. My hope for the cannabis oil is that she continues to improve. The oils have taken her seizures away and because of that she’s able to focus on her world. She’s no longer locked inside her head. The oil is literally saving her life. It’s bringing her out of her pain and into a world she can enjoy.
I use the phrase “She’s going to roar!” for Carlee. She may not speak, she may never speak. We may not hear her voice out loud, but we hear it in our hearts. Just because she’s silent doesn’t mean she doesn’t have anything to say. Just look into those big brown eyes and you’ll melt in love with her. She’s a fighter and a survivor and a warrior. She’s my hero.