Amy’s journey began on a sunny, beautiful Florida day January 24, 2010. She was hit by a car in front of our house and was airlifted to the nearest trauma hospital with a catastrophic brain injury. Against all odds, Amy survived! She is a fighter with a heart of gold!
Her epilepsy journey began about 1 1/2 yrs after her accident. She started to show seizure activity and it became progressively worse over time. EEG’s were done and seizure medications started. At first it was a few twitches and blank stares here and there, but as time went on the seizures became a daily event. The neurologists told us that she had a “honeymoon” period after the initial injury and we were lucky that we had that long break before the seizures started.
In 2012 Amy was diagnosed with Lennox Gastaut Syndrome, intractable epilepsy, with no hope of a cure I was given the only option according to an epilepsy specialist a right brain removal to stop the seizures. This was not an option in my opinion! Seizure medications came and went as they either did not work or had horrific side effects.
In April 2015 we relocated to Colorado Springs, Colorado to get cannabis treatment for her seizures because our home state of Florida was delayed in getting a program set up for children with epilepsy.
Amy loves music, horses, funny movies, and laughter! She is now 14 years old and the daily seizures (tonic-clonic, myoclonic, absence, partial complex) have taken away the sparkle in her eyes. I hope that we can get the sparkle back and she can have the wonderful life she deserves. Amy Sue is my hero because no matter what she never gives up!